When I visited my neuropsychologist last Monday we discussed what is perhaps the most troubling of the varied effects of my brain injury, my tendency to become quickly and severely overwhelmed without warning so that my brain does not function at all well. It can freeze my thought processes or slow them to a crawl making me completely ineffectual, or sometimes merely dull.
I call it "flooding," a term I borrowed from the author of "Over My Head." A change in light intensity, fatigue, noise, too many stimuli, etc. can cause me to flood at times, yet there are times I can tolerate these things with only minimal distress. I can never predict my response, so I am always a little nervous about shopping, any social event, performing any important task, ect. The unpredictability bothers me as much as the actual flooding event.
My first brain injury was in 1988 and I spent several years in a wheelchair. In time, I was healed both physically and cognitively with little residual, although Dr. Schutz says he still sees effects of that injury. I believe that the healing I did experience came from the Lord because brain damage is permanent. Then in 1992, I suffered another brain injury with little physical impairment but considerable cognitive involvement. Again, over time, I improved... so much so that by the time I sustained my last head injury in 2004, I was working quite successfully as a Wal-Mart assistant manager at one of California's busiest stores. There are few jobs more demanding or filled with more stimuli. I was doing fine in spite of the two previous brain insults. Flooding was never a problem for me there, even in that hugely busy environment. Give God the credit again!
So now it has been over three years since my latest TBI and, while there has been great improvement, I have reached a plateau and stayed there. I cannot say I am anywhere close to as functional as I was on 9/7/04, the day before my accident. God healed me before and I guess I have been expecting Him to do an encore. I had to admit to my doctor and friend, Dr. Schutz that I have been a bit irritated about the continued problems my leaky, unpredictable brain causes.
Dr. Schutz accused me of being prejudiced against brain injured people. That stopped me cold. I hate prejudice of any sort, but he may be right in a way. By resenting my own injured brain, I have been making a tacit statement against all TBI victims. Not a good thing! And it is inhibiting my own recovery.
I have been viewing every flooding incident and every brain malfunction as a failure thus causing me to become increasingly dissatisfied with myself and less willing to venture into activities and relationships. I find myself warning others that I will make mistakes, predicting I will fail. There is an old saying, "You don't know who you are until you know what you can do," and since I never know from one day to the next what I can do, I bought into that whole concept. But it is a lie! I DO know who I am! I am a child of God, a King's daughter, and my Father has a plan for my life (which isn't over yet!) a very special plan that includes the brain that I have now.
Dr. Schutz reminded me I have already received my miracle of healing, that my response to the flooding, to brain malfunctions of any kind is what matters. I have been granted the freedom to flood. When (not if) it happens, instead of reacting with panic and fear, I will let it happen, stop until it passes, then go on, praising God for the victory. So if, as often happens, I flood while shopping and have to abandon my cart and leave the store. Instead of responding with shame, self loathing and anger, I will thank God and congratulate myself that I had sense enough to remove myself from overstimulation and accept the break as a welcome respite. When I make other cognitive errors, I will continue to do my EA's (Error Analysis reports) and work on creating preventative strategies.
New freedom! Freedom I enjoyed this morning as I went to volunteer at the homeless mission in Kissimmee without the nagging thought in the back of my mind that I might flood, that I would forget what people told me, that I would seem stupid or dull... or worst of all, that people would be condescending to me. I had a great time. Yes, there were times I lost track of what I was doing. I had some spasticity and managed to make a mess or two, but I didn't freak out, not even quietly. When I felt fatigue creeping up on me, I had sense enough to leave... without beating myself up. Quite the contrary, I was pleased with myself and proud to be a TBI survivor.
But I did have a bit of a lesson in humility. I have prayed that the Lord would increase my humility, make me more patient and teachable. He answers those kind of prayers big time! I was cutting onions when Chris the director of that kitchen showed me another way, saying she feared I would cut myself. I was insulted. I didn't like being told what to do or how to do it. I said I had been cutting onions that way for 50 year, blah, blah, blah. What a jerk! I was a snot! I told her I would do it her way in her kitchen, but.... What is WRONG with me!?! The Holy Spirit let me know just how prideful and petty I was being, so with a very contrite heart, I told Chris how sorry I was and that her way was indeed much better. She was quite gracious and seemed not to have noticed that I was behaving badly.